FACS in the news
Anti-epileptic drug sodium valproate faces restrictions after 26 babies born with serious disorder - New Zealand Herald 10th March 2019
Tighter controls on epilepsy drug 'don't go far enough' to prevent harm to unborn babies - Stuff New Zealand 5th March 2019
Risks of anti-epileptic drugs during pregnancy- Radio New Zealand 25 January 2019
Understanding the experience of parents concerned about foetal valproate syndrome in their child
If you a mother who use(d) sodium valproate during pregnancy, and would like to take part in some research "Understanding the experience of parents concerned about fetal valproate syndrome in their child" please contact firstname.lastname@example.org. This research is for NZ and Australia.
Health Select Committee
The Health Select Committee met again to hear the submissions from Ministry of Health/Medsafe and ACC. Here is a link to the live stream that was recorded on the day via Facebook https://www.facebook.com/facsnz/videos/318869522230995/ . Denise’s right of response can be viewed on YouTube https://www.youtube.com/watch?v=V9RgoyBSnvA
Denise Astill’s first presentation to the Health Select Committee was on Wednesday 26th of September 2018. To see her rehearsal please go to https://www.youtube.com/watch?v=4-w99lxH8zw
To read all of the submissions please go to https://www.parliament.nz/en/pb/sc/scl/health/tab/submissionsandadvice?criteria.Keyword=astill&criteria.Timeframe=&criteria.DateFrom=&criteria.DateTo=
Calls for public inquiry into anti-epileptic medicine use during pregnancy
Antiepileptic drugs in pregnancy: Why patients need to be warned (NZ Doctor Article), 1st December 2017
Launch of the ACC FACS Prevention toolkit
On the 23rd November 2017 the ACC FACS Prevention toolkit was launched. Watch the video of FACS NZ's Executive Officer Denise Astill address the audience via the link https://youtu.be/vdeFBaWfqZ4
FACS NZ Youth Ambassadors
We would like to introduce our first FACS NZ Youth Ambassadors Natasha Astill and Ki Plumley. Here is a short video of them introducing themselves. Follow and like them on Facebook @FACS NZ Youth Ambassadors, Instagram facsnz_youth, Twitter @FACNZ_Youth and YouTube FACSNZ- Youth Ambassadors
Foetal Valproate Syndrome and teenage behaviour
Sodium Valproate in the news
FACS NZ - Making Change Happen!
FACS NZ are so pleased to announce that all of the hard work that we have pushed for in regards to Sanofi putting warnings on the NZ (and Australia) Epilim boxes has come into fruition. Today one of our mum's who has a child affected picked up her medication and it was on there.
Such a win!
**PLEASE DO NOT STOP TAKING YOUR MEDICATION WITHOUT SPEAKING TO YOUR HEALTHCARE PROFESSIONAL**
FACS NZ CMI Challenge
Take a look at our challenge to Pharmacists
FACS NZ CMI Challenge https://youtu.be/vR2FYhaaK9E
International FACS Awareness Week 13-17 Feb 2017
We had a hugely successful FACS Awareness week with our UK friends. We have had a lot of information and photos on the FACSNZ Facebook page. Go and check them out.
Education sessions tour completed.
Thank you to those who attended the education sessions throughout the North and South Islands. They have been hugely successful and as a direct result from this there have already been further discussions with key parties. If you are wanting to have an education session in your area please contact Denise@facsnz.com.