News

FACS NZ Youth Ambassadors

We would like to introduce our first FACS NZ Youth Ambassadors Natasha Astill and Ki Plumley. Here is a short video of them introducing themselves. Follow and like them on Facebook @FACS NZ Youth Ambassadors, Instagram facsnz_youth, Twitter @FACNZ_Youth and YouTube  FACSNZ- Youth Ambassadors

https://www.youtube.com/watch?v=b2b-zqHBNf8

 

Foetal Valproate Syndrome and teenage behaviour

https://www.youtube.com/watch?v=ED03EKL2c0o&t=147s

 

Sodium Valproate in the news

http://www.radionz.co.nz/news/world/329200/research-confirms-epilepsy-drug-birth-defects

http://www.bbc.com/news/world-europe-39657139

 

FACS NZ - Making Change Happen!

FACS NZ are so pleased to announce that all of the hard work that we have pushed for in regards to Sanofi putting warnings on the NZ (and Australia) Epilim boxes has come into fruition. Today one of our mum's who has a child affected picked up her medication and it was on there.

Such a win!

**PLEASE DO NOT STOP TAKING YOUR MEDICATION WITHOUT SPEAKING TO YOUR HEALTHCARE PROFESSIONAL**

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FACS NZ CMI Challenge

Take a look at our challenge to Pharmacists 

FACS NZ CMI Challenge https://youtu.be/vR2FYhaaK9E

International FACS Awareness Week 13-17 Feb 2017

We had a hugely successful FACS Awareness week with our UK friends. We have had a lot of information and photos on the FACSNZ Facebook page. Go and check them out. 

 

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Education sessions tour completed. 

Thank you to those who attended the education sessions throughout the North and South Islands. They have been hugely successful and as a direct result from this there have already been further discussions with key parties. If you are wanting to have an education session in your area please contact Denise@facsnz.com.

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Anti-convulsant syndrome awareness

https://www.odt.co.nz/regions/north-otago/anti-convulsant-syndrome-awareness

 

Drug risks to be outlined

 

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Project Team formed for FACS Prevention

http://www.scoop.co.nz/stories/GE1605/S00135/project-team-formed-for-facs-prevention.htm

  

Toolkit on the risks of valproate medicines in female patients (Article from the UK)

https://www.gov.uk/government/publications/toolkit-on-the-risks-of-valproate-medicines-in-female-patients?utm_source=utm_source%3Dtwitter&utm_medium=utm_medium%3Demail&utm_campaign=Valproate

Campaigner hails new warnings on anti-epilepsy medication

https://www.tvnz.co.nz/one-news/new-zealand/campaigner-hails-new-warnings-on-anti-epilepsy-medication

Mum unaware her epilepsy drugs could harm her twins

https://www.tvnz.co.nz/one-news/new-zealand/mum-unaware-her-epilepsy-drugs-could-harm-twins

 

Trans-Tasman Early Warning System - Alert Communication

Use of sodium valproate (Epilim) in pregnancy

http://www.medsafe.govt.nz/safety/EWS/2015/sodiumvalproate.asp

Highlighting foetal syndrome

http://www.odt.co.nz/news/dunedin/350907/highlighting-foetal-syndrome

Medsafe's updated Epilim Data Sheet for Health Care Professionals

http://www.medsafe.govt.nz/.../e/Epilimtabsyrliqiv.pdf

Drug Nightmare for Mums

http://www.stuff.co.nz/national/health/10576738/Drug-nightmare-for-mums

MHRA Article from the UK

https://www.gov.uk/government/news/stronger-advice-on-the-use-of-valproate-medicines-in-women

Pharmac NZ update discussing the Use of Sodium Valproate in Pregnancy
http://www.medsafe.govt.nz/profs/PUArticles/PDF/Prescriber%20Update%20December%202014.pdf

ACC Case study on Sodium Valproate exposure during pregnancy
http://www.acc.co.nz/PRD_EXT_CSMP/groups/external_providers/documents/reference_tools/wpc134286.pdf

 

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