Starting as a passionate group of people beginning a journey of positive change, it became evident early on that a not-for-profit organisation dedicated solely to Foetal Anti-Convulsant Syndromes was a necessity. This led to the official launch of FACS NZ in February 2015.
Foetal Anti-Convulsant Syndrome New Zealand (FACS NZ) believes in a:
Vision of …understanding and recognition of what the different anti-convulsant syndromes are and how they can be prevented.
Mission …to provide support, education and awareness of Foetal Anti-Convulsant Syndromes.
Leading this forward thinking organisation is our Executive Officer Denise Astill. Denise has hands on practical experience and knowledge that is not found in a book. She lives with and loves people who are affected by Foetal Valproate Syndrome (FVS) as her twin daughters’ were diagnosed at 4 ½ years of age. Denise has become used to having to pave a way for recognition, knowledge, education and support for FVS. Her two children were the very first cases accepted under Treatment Injury in ACC. This was monumental achievement as it has led to future cases being accepted.
At FACS NZ we provide up-to-date information on our website; support and education, whether it be on an individualised basis, or to a larger group or community; awareness of the syndrome; and seek to decrease the likelihood of these syndromes.
The future is exciting when we at FACS NZ think about the positive change that is going to occur, and know that we will leading that charge.
NOT ALL FEMALES WHO TAKE AN ANTIEPILEPTIC MEDICATION DURING PREGNANCY WILL HAVE CHILDREN THAT ARE AFFECTED. CONSULTATION WITH A SPECIALIST PRIOR TO GETTING PREGNANT IS RECOMMENDED. WOMAN WHO ARE PREGNANT, OR PLANNING TO GET PREGNANT SHOULD NEVER STOP TAKING THEIR MEDICATION WITHOUT SPEAKING TO A MEDICAL PROFESSIONAL.